Benefit Information Sites |
| Direct Gov |
Government site gives overview of current benefits for Carers. |
| Disability Benefits Information |
This website gives information on benefits. It lists entitlement, claiming, who deals with the claims, how the benefit is paid, for how long and gives current rates. The site also gives links to charities and helpful organisations. |
| NHS Choices |
Overview of benefits for Carers.
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| turn2us |
turn2us is a new charity helping people to find out about the charitable grants and state benefits they may be entitled to. |
Carers |
| Carers Direct |
Part of NHS Choices, Carers Direct gives information, advice and support for carers. |
| Carers UK News and Campaigns |
Carers UK continues providing news and campaigns on behalf of Carers. Check for latest updates. |
| Grandparents Plus |
Grandparents Plus is the national charity which champions the vital role of grandparents and the wider family in children's lives - especially when they take on the caring role in difficult family circumstances.
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Disabled Access Sites |
| Adaptawear |
The site advertises adaptive clothing which is designed to accommodate easier dressing for the elderly and disabled. |
| Allana |
Allana, provides a range of specialist designer clothing for people with physical disabilities.
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| at dementia |
This website aims to provide user-friendly information about assistive technology for people with dementia.
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| Bathing Made Easy - Disabled Living Foundation |
The website is a search and comparison website for older and disabled people, allowing them to compare different bathing products that might be suitable for them.
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| Blue Badge Disabled Map |
An interactive online service which will make it much easier for disabled people to find Blue Badge scheme parking bays in 64 cities across the UK.
This mapping facility will enable people to search by postcode or town/area name for designated Blue Badge parking bays, parking bays that fall on red routes in London and accessible petrol stations. The service will also outline any time restrictions or special notices that apply to individual allocated Blue Badge parking bays.
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| Cinema Exhibitors |
Holders of the card are entitled to one free ticket for a person accompanying them to the cinema. To apply for the card the person must be: in receipt of Disability Living Allowance or Attendance Allowance; be a registered blind person or be a holder of a disabled person's rail card. The card is valid for 1 year and costs £5.50 (processing fee). Get an application form from local cinemas - all major chains participate including UCI/Odeon/Showcase/Cineworld. You can also download an application form from the website. Note: All applications must be accompanied by a photo of the person with the disability and proof of entitlement.
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| DisabledGo |
DisabledGo provides free detailed access information for disabled people across the UK. |
| Essential Aids |
Essential Aids sell daily living aids to help the disabled community, the elderly and others facing mobility difficulties |
| Fledglings |
Fledglings searches for products which are affordable & appropriate to meet the specific needs of disabled children and their families. Fledglings also supplies many items which are difficult to find via mail order. A brochure of products is available. |
| ilocate |
The company provides devices for tracking dementia sufferers to allow them to stay in their own environment for longer. ilocate offers a simple one stop package for carers to use. The ilocate Home Start pack includes everything that is needed to increase peace of mind - an easy to use wearable tracker, 12 months network airtime and 12 months unlimited access to a web based mapping facility. For details click sales@ilocate-uk.com |
| Incontinence Advice All About Incontinence |
Incontinence Advice All About Incontinence
Description: Specialist advice and information on incontinence and bladder weakness. Comprehensive range of incontinence products including Tena range. Fast, discreet delivery.
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| Inspired Services |
This website provides publishing advice including design and production of accessible materials for disabled people and people with learning difficulties. Expert advice, advocacy and support is also provided. |
| Mobility Information Service |
The organisation provides information on the purchase of vehicles, adaptations to vehicles, wheelchairs, other mobility equipment and general mobility concerns. |
| Mobility Trust |
The Trust provides powered wheelchairs and scooters for severely disabled children and adults who cannot obtain them through statutory sources or purchase such equipment themselves. The Trust also organises medical assessments, but does not give grants. |
| Motability |
Motability is a national charity, set up to assist disabled people with their mobility needs. We direct and oversee the Motability Scheme which enables disabled people to obtain a car, powered wheelchair or scooter simply by using their government-funded mobility allowances. |
| Open Britain |
This website gives information on accessible accommodation and travel in the UK for people with disabilities and specific access requirements. |
| Tunstall Response |
The Lifeline service from Tunstall Response provides cost effective support to enable older and vulnerable to remain living at home independently and in safety. A Lifeline alarm enables people to call for help at the touch of a button, either when an incident occurs or when they simply need to hear a friendly voice. The service which is available 24 hours a day, 365 days a year, offers reassurance not only to the person with the need but also to their carers and concerned family members.
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| uhad2bthere - The Disability Information site |
This site brings together a searchable database of Charities, Organisations, Companies and Service Providers from all around the UK, to help disabled people, their families and health care providers, find just the right information and make contact with the people who can help them the most whatever their needs or aspirations.
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| Welcome Mobility |
Welcome Mobility features a range of mobility aids. The site offers many thousands of disability and living aids including wheelchairs, grab rails, ramps and many more. |
| Yoodo.org |
This information portal provides information for disabled people, their families, friends, carers and employers. This is a Leonard Cheshire Disability initiative. |
Employment Information Sites |
| Employers for Carers |
Provide advice and support for employers seeking to develop carer friendly policy and practice and retain skilled workers.
Identify and promote the business benefits of supporting carers in the workplace.
Influence government and employment policy and practice to create a culture which supports carers in and into work.
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| Investing in Brighter Futures, Bankers Benevolent Fund |
“Investing in Brighter Futures” and is available to any individual who is either disabled or a carer of a disabled person and who works for a bank (or has worked for a bank) for a minimum of 5 years. The scheme offers a personal advisor to assist with things like benefit information, distance mentoring, home assessment visits with follow-up support in complex situations, help with applying to the BBF for grant funding and much more. |
| Welfare to Work Information Network |
The Welfare to Work Information Network has been developed by the Centre for
Economic and Social Inclusion and is also supported by Joncentre Plus.
The website aims to become a comprehensive resource for welfare to work information. |
| Working Families |
Working Families is the UK’s leading work-life balance organisation. The organisation helps and gives a voice to working parents and carers, whilst also helping employers create workplaces which encourage work-life balance for everyone. |
General Information Sites |
| Action For Children |
Action for Children supports and speaks out for the most vulnerable children and young people (including young carers) in the UK
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| British Agencies for Adoption and Fostering |
BAAF is the leading membership organisation for agencies and individuals concerned with fostering, adoption and work with children and families. It is also a publisher, training provider and family finder in this field. |
| British Gas Energy Trust |
The British Gas Energy Trust, which incorporates the Scottish Gas Energy Trust, is an independent Charitable Trust established in September 2004 which aims to contribute to the fight against poverty. Covering England, Scotland and Wales it is the first national utility Trust of its kind and will make a significant difference to those in need.
Grants are available to help individuals and families in need to meet arrears of energy charges and other household bills and costs. The Trust will also fund voluntary sector organisations to provide money and debt advice services. |
| Care Homes Guide Ltd |
Care Homes Guide Ltd provides an in-depth search facility for all types of nursing, residential, and retirement homes. |
| Care Homes Today |
Care Homes Today, is free specialist advice/help service that assists people in finding care of all types throughout a range of counties in the UK.
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| Citizens Advice |
This site gives information on the location of Citizens Advice Bureauxs in the UK and the services they provide. |
| Citizens Advice - Online Advice Service |
The online CAB service provides independent advice on rights giving practical, reliable, up-to-date information on a wide range of topics, including benefits, housing, employment and debt, consumer and legal issues
details of reliable sources of advice if more help is needed, including the local CAB.
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| Community Legal Service Direct |
If you live in England or Wales and want free high-quality legal information to help you deal with your legal problems, Community Legal Service Direct (CLS Direct) can help. You can:
-read free legal information leaflets or legalhelp factsheets
-search for a high-quality local legal adviser or solicitor
-search for legal information from a selection of the best advice websites in the UK
-find out if you qualify for legal aid
-if you qualify for legal aid call our national helpline 0845 345 4 345 for free advice about benefits, tax credits, housing, employment, education or debt problems. |
| Counsel and Care |
This site gives advice (including Factsheets on a range of topics) to older people, their carers and professionals such as social workers. |
| Counselling Directory |
This website is a support network of UK counsellors and psychotherapists, with information on their training and experience, areas of counselling covered, fees and contact details. This service is free, confidential and easy to use. |
| Daycare Trust |
The Trust provides information to parents, providers, employers, trade unions and policy makers about childcare services. |
| Debt Advice Foundation |
The Debt Advice Foundation is a registered UK debt advice charity offering free, confidential support and advice to anyone worried about debt. They can help you understand what options are available to you and because the organisation is a charity, the advice is impartial and based solely on what is best for you.
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| Disabled Living Foundation (DLF) |
The Disabled Living Foundation (DLF) helps older and disabled people find equipment solutions that enable them to lead independent lives. DLF provides a comprehensive database of equipment; factsheets; free advice service and helpline; equipment demonstration centre; training courses and SARA - Self Assessment, Rapid Access, that allows people to answer questions to get a personalised report recommending equipment and containing useful tips just for the individual.
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| Elderly Accommodation Counsel |
The organisation gives advice and information on accommodation and care options for older people. |
| Elite |
E.L.I.T.E Peer Support offers friendly, informal, but confidential support to any disabled person and carers. It is distinctive in being provided for disabled people and carers by disabled people and carers.
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| Family and Parenting Institute |
The Family and Parenting Institute is the leading centre of expertise on families and parenting in the UK. The Institute's mission is to support parents in bringing up children.
The Institute carries out research and policy work to find out what matters to families and parents. They develop ideas to improve the services families use and to improve the environment in which children grow up. They work to inform policymakers and public debate and they develop practical resources for people working with families.
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| Findacarehome |
Findacarehome is an online resource designed to assist people looking for information on care homes and nursing homes in the UK.
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| Focus on Disability |
The site has a wide range of information for disabled people and their carers in the UK. For a comprehensive list of topics view the Main Index.If you do not find the information directly the site has reference tomany organizations and agencies who may be able to help you. |
| Fostering Solutions |
Fostering Solutions is an independent foster care agency who are passionate about ensuring positive outcomes for children and young people in fostering.
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| Funding Caring |
FundingCaring was formed to offer a unique reference point on planning to finance the care of elderly or disabled relatives.
If you care for an elderly relative, are unable to look after yourself, or you support a disabled relative, this site explains the financial options open to you.
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| HearFirst |
HearFirst is a training provider. We offer training in disability equality and awareness, British Sign Language, deaf awareness, deafblind awareness and visual awareness training in the workplace. We are a deaf/disability lead organisation, established in 2002. We are passionate about achieving our goals and providing quality, inspiring and innovative Awareness and Equality training.
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| Help to Heal - Counselling Services |
This website provides a free directory of accredited counsellors. There is also a glossary of therapeutic approaches, upon which many types of counselling and therapies are based.
There is also advice on the most appropriate course of action action to take in tackling specific problems.
There is a therapy guide to explain the many kinds of counselling services and advice available and the problems these approaches can help to resolve.
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| Housing Care |
This is a site for older people and all who provide housing, care or support to them.
This site aims to help older people make decisions about where to live, and any support or care they need. It will help people maintain, adapt or improve their home; find care or home help services; or move to retirement, or extra care housing, or to a care home. It is a partnership venture, led by the charity Elderly Accommodation Counsel (EAC). |
| Inspiritbuxton |
The website aims to promote and support activities for the elderly and others in care, whether at home or in a residential environment.
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| London for Kids |
The site provides London dwellers with a comprehensive listing of child related topics such as events, soft play, child care, charitable organisations and many others. |
| Making a Will |
HowTo is an Oxford-based publisher who have made over 150 of their titles available for free online.
The HowTo range of titles allow people to access factual information on a variety of topics with no registration of fees. For example a book entitled "How To Make Your Own Will" by Gordon Bowley is available.
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| Money Carer |
Money Carer is a confidential and unique appointeeship service from The Money Carer Foundation, a not for profit organisation and Department Of Work And Pensions (DWP) authorised Corporate Appointee. Developed to provide assistance to local authorities, care agencies, service users and their families the Money Carer service offers a secure, confidential, caring and professional approach to this important part of benefit and daily money management care.
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| Myvesta UK |
This UK not-for-profit group social enterprise provides free assistance and service
to people suffering from the emotional and financial issues caused by money troubles. With over 1,200 pages of self-help, questions, answers,
videos and other resources on the site, it provides a resource for consumers. The free resources include money advice forums, online
instructional videos, self-help resources and frequently asked questions.
For those that have a personal question they can chat confidentially with a senior debt adviser online for free through the site. |
| National Council for Voluntary Services |
The National Council for Voluntary Services is a growing network of over 300 Councils for Voluntary Services (CVSs) throughout England. Their aim is to promote voluntary and community action by supporting member CVSs and giving a national voice for the local voluntary and community sector. |
| National Debtline |
National Debtline (0808 808 4000) is a national telephone helpline for people with debt problems in England, Scotland and Wales. The service is free, confidential and independent. The service has existed since 1987 and was set up in conjunction with Birmingham Settlement and the Money Advice Association. National Debtline is now part of the Money Advice Trust, (registered charity no 1099506). The service provides self-help advice to its callers and also produces written self-help packs and factsheets to back this up. The service can also assist callers with the setting up of Debt Management Plans for England & Wales or Scotland.
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| National Extension College |
The National Extension College, based in Cambridge
offers distance learning/home study courses to students worldwide. |
| NCH |
The organisation helps the UK's most vulnerable children reach their full potential. There are 480 community based projects nationwide helping children and young people and their families, including projects for disabled children and children and young people who care for a sick parent or relative. |
| Social Care Institute for Excellence |
The Social Care Institute for Excellence (SCIE) was established by Government in 2001 to improve social care services for adults and children in the United Kingdom. The organisation achieves this by identifying good practice and helping to embed it in everyday social care provision.
SCIE works to disseminate knowledge-based good practice guidance; involve service users, carers, practitioners, providers and policy makers in advancing and promoting good practice in social care; enhance the skills and professionalism of social care workers through our tailored, targeted and user-friendly resources.
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| St. John Ambulance |
St. John Ambulance is the UK's leading First Aid, transport and Care charity. It provides First Aid and medical support services, caring services in support of community needs and education, training and personal development to young people.
St. John Ambulance trains over half a million people each year, running a range of First Aid courses for children, the general public and the workforce.
St. John Ambulance has over 47,000 volunteers and 200,000 casualties are treated by trained volunteers a year.
In recognition of the increasing numbers of vulnerable people in society, the organisation has developed a network of caring services across the country. Volunteers are all fully trained and they give over half a million hours of care to their communities each year. The charity also runs courses for carers.
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| The Centre for Excellence and Outcomes in Children and Young People’s Services (C4EO) |
This new organisation has been developed for the children’s sector, from the children’s sector.
C4EO will identify and coordinate local, regional and national evidence of ‘what works’, to create a single and comprehensive picture of effective practice in delivering children's services. Using this information, C4EO will offer support to local authorities and their Children’s Trust partners, working with them to improve outcomes for children, young people and their families.
It will focus its work on six national themes identified in Every Child Matters. These are: early years; disability; vulnerable children (particularly children in care); youth; parents, carers and families; and schools and communities.
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| The Consortium Care |
This website used by many UK care homes for their care supplies. The company supply a wide range of care supplies and are a ‘one stop shop for care home supplies’. |
| Tinies Childcare |
Find a nanny and other childcare in the UK -
Tinies Childcare provides a wide range of services for parents and childcarers. We help families looking for childcare and for nannies and childcarers looking for employment. Advice on every aspect of childcare. Information on providing a permanent or mobile crèche. www.tinies.com |
| UK & Ireland Directory of Counselling and Psychotherapy |
A directory listing counsellors and psychotherapists in the UK.
Useful resource for those seeking emotional support or emotional healing. Searchable on region, town, postcode, agency or practitioner name. Searches can be refined to help find a suitable practitioner based on factors such as skills, way of working or organisational accreditation.
You can find out more by consulting the help link on the website.
The organisation follows the ethical code of the British Association for Counselling and Psychotherapy.
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| Write to Them |
This independent, charitable project helps the public contact their elected representatives such as councillors, MPs and MEPs etc. |
| Yourcarehome.co.uk |
Yourcarehome.co.uk is a new web based resource for people looking to find a care home for themselves or a loved one covering residential, nursing, dementia, respite and day care homes for the elderly. The aim is twofold - to provide an extensive, independent, easy to use search facility to find a care home with up to date details and photos, and to direct people to the best help and advice on the internet giving them the unbiased information they need to make informed choices. |
General Information Sites about Caring |
| Care Directions |
Empowering information to help older people and their care givers access and achieve preferred care and lifestyle choices. Register for free Newsletters.
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| Carers Direct |
Carers Direct is a new service recently launched on NHS Choices (www.nhs.uk) as part of the government’s New Deal for Carers. The service is designed to improve support for the UK's growing number of carers.
It provides carers with a single and comprehensive online resource for carer specific information, including: guidance on the different stages of caring, information for claiming benefits, advice for young carers, contact details for local authorities, news articles, and case studies with videos. As part of the service, a free telephone advice line will launch in April 2009.
Future development will allow carers to receive answers to email enquiries and join online communities and forums.
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| Carers UK |
The organisation provides a national voice for carers campaigning on their behalf, giving information and advice and generally support the caring role. |
| Carers World Radio |
Carers World Radio provide carers with information and news to help them care. World Radio is broadcast from the UK, but as carer's face the same issues all over the world, stories and features from around the globe are included. Carers don't need to feel alone or isolated; Carers World Radio can help connect carers to information, support and the human side of the issues faced.
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| Carewatch Care Services |
Carewatch provide health care services and nursing to the elderly, people with long term illness, & people with disabilities and special needs.
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| Caring with Confidence |
Caring with Confidence is part of the Government's 'New Deal for Carers' - an initiative aimed at improving support for carers. In December 2007, the Department of Health awarded the contract to deliver an expert carers programme in England to a consortium of five partner organisations - Carers UK, Crossroads Caring for Carers, Expert Patients Programme Community Interest Company (EPP CIC), Partners in Policymaking and The Princess Royal Trust for Carers. EPP CIC is the lead administrative organisation.
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| Crossroads Caring for Carers |
A respite organisation providing home based support for carers, deputising for them so that they can take a break from their caring role. The service operates throughout Staffordshire and support every client group and every age group within the county. Crossroads seeks to provide care support workers, who integrate with the family and in particular the primary carer. Carers from Crossroads are supported by a caring team to assist in answering questions. For more information telephone Ros or Angela on (01782) 683144 |
| EQUIP - Electronic Quality Information for Carers |
The Carers section on EQUIP, managed by NHS West Midlands, has links to websites about carers and a list of support groups and services related to carers support. Each topic has a section of ‘Useful links’ - these websites have been accredited by staff at NHS West Midlands and are aimed at the public. Each topic also has a list of ‘Support groups and services’ - websites in this list have not been accredited but they may give additional information on specific topics. |
| Fostering |
Fostering Solutions is an independent foster care agency who are passionate about ensuring positive outcomes for children and young people in foster care.
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| Independent Age |
IndependentAge helps older people on low incomes to live with dignity and peace of mind by providing:
-a regular extra income
-grants for emergencies
-equipment to aid
-independence
-the support and friendship of volunteers
-nursing and residential care homes
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| JustParents |
JustParents gives Parenting and Pregnancy advice for mums and dads. With baby names, gender predictor, forums, parents blogs and much more!
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| Muslim Health Network |
The Muslim Health Network aims to improve standards of health and well being within the Muslim community through information, support, news, events, debate and promotion of general health issues. |
| New Deal for Carers |
Department of Health Website that collects Carers views on relevant issues to them. |
| North Staffs Carers Association (NSCA) |
NSCA provides information, emotional support and a voice for carers in the planning and monitoring of services. The Accociation's services are available to Carers of all ages, including Carers under the age of 18, living in North Staffordshire (Stoke on Trent, Newcastle under Lyme, Leek and the Staffordshire Moorlands). |
| Social Care Institute for Excellence - Carers Section |
The Social Care Institute for Excellence (SCIE) was established by Government in 2001 to improve social care services for adults and children in the United Kingdom. The organisation achieves this by identifying good practice and helping to embed it in everyday social care provision. SCIE works to disseminate knowledge-based good practice guidance; involve service users, carers, practitioners, providers and policy makers in advancing and promoting good practice in social care; enhance the skills and professionalism of social care workers through our tailored, targeted and user-friendly resources. There is now a specific Carers section on this website. |
| Social Care Institute for Excellence - Social Care on Line |
Provides range of information and research on all aspects of social care - for free.
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| The Carer |
Tips and advice to all carers on getting help, everyday practicalities, accommodation, health issues, money matters and bereavement. |
| The Princess Royal Trust for Carers |
The Princess Royal Trust for Carers is the largest provider of comprehensive carers' support services in the UK. Through its network of 118 independently managed Carers' Centres, young carers services and the interactive website , the Trust provides quality information, advice and support services to 180,000 carers including 10,300 young carers.
The Trust provides training and support for Carers Centres, as well as raising funds for development work. It also has a range of grant schemes for carers, including an Educational Bursary Scheme, a Carers' Relief Fund for carers in particular financial difficulties and a Young Carers Fund. To apply for funding under any of these schemes, carers should contact their nearest Carers Centre.
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| The Princess Royal Trust for Carers Professionals Website |
The Princess Royal Trust for Carers Professionals website provides information for anyone working professionally with carers. The aim is to provide access to knowledge sourced from the nationwide network of Carers Centres that will help professionals provide the best quality of support to the carers. |
Government Departments |
| Care Quality Commission |
The Care Quality Commission is the independent regulator of health and social care in England.
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| Care Quality Commission |
The Care Quality Commission will regulate and improve the quality of health and social care and look after the interests of people detained under the Mental Health Act.
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| Caring for Carers |
Information for professionals and carers about government services and other help. Includes government policy on carers. |
| Commission for Social Care Inspection (CSCI) |
This Commission is reponsible for local inspections of all social care organisations and for registering their services. |
| Department for Work and Pensions |
The Department for Work and Pensions is responsible for the Government's welfare reform agenda. Its aim is to promote opportunity and independence for all and deliver support and advice through a modern network of services. These services are available to people of working age, employers, pensioners, families and children and disabled people.
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| Department of Health |
This central government has a website incorporating general information on health and social care matters for carers. |
| Direct Gov Website |
This website gives a single point of access to government information and services, benefits and support for carers and professionals. |
| Direct Gov Website |
Government information site on disability issues. |
| Equal Opportunities Commission |
The Equal Opportunities Commission is the leading agency working to eliminate sex and other forms of discrimination in 21st Century Britain. |
| HMSO |
Her Majesty,s Stationery Office publishes all government legislation, circulars etc. Acts of Parliament can be viewed on this website. |
| Supporting People Project |
The Supporting People Project is a new government initiative, which aims to establish a new integrated policy and funding framework to replace the current complex and uncoordinated arrangements for providing housing and related services for vulnerable people. |
Health Information Sites |
| BBC Health Conditions Database |
This site provides a database on general health conditions. |
| Beecareful.info |
beecareful.info is a website and information centre providing simple, practical, help, support and advice. If you have a health or social care need, beecareful.info offers free information from; care homes, Advisory and Legal, Support Organisations, Housing, Care Services and so much more.
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| Drug3k - Online Drug Encyclopedia |
Online Drug Encyclopedia
Featuring detailed information on prescription and medications including description, image drug, use, dosage, storage, precautions, and side effects. |
| EQUIP - Electronic Quality Information For Patients, Families and Carers |
An NHS website which signposts members of the public to useful health
and social care websites that have been quality-checked and has a
directory of over 4200 support groups and services both national and
local to the West Midlands and checked regularly.
|
| Lower Cholesterol Guide |
Information on lowering cholesterol, cholesterol diet, low cholesterol foods, cholesterol tests and cholesterol medications.
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| Medical Advisory Service |
The remit of the Medical Advisory Service is to provide professional advice and information over the telephone on all aspects of medical and healthcare matters.
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| NHS Choices |
NHS information on medical conditions, treatment available, choices for care etc. |
| NHS Direct |
General health information provided on this NHS site. |
| NHS Information |
The website has information about what the NHS has to offer and how you can get access to these services. |
| NutraSanus.com |
NutraSanus.com is a non-commercial natural health website that offers information on natural health, health supplements etc. (People taking advice is at their own risk as Carers Information cannot accept any liability for the content of this website.) |
| Repetitive Strain Injury - Safe Computing Tips |
Learn about office ergonomics, workstation ergonomics, computer ergonomics, laptop ergonomics and ergonomic seating. Healthy computing tips about carpal tunnel syndrome, repetitive strain injury & other muscle pains while using your computer for longer periods of time.
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| Sleep Disorders Guide |
A comprehensive information guide about sleep disorders. Descriptions, symptoms, causes, treatments of various sleep disorders like sleep apnea, insomnia, snoring, restless legs and narcolepsy.
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| Stop Smoking Tips and Quit Smoking Help |
Stop Smoking is really a tough job. Every smoker wants to quit smoking cigarettes, but finds it difficult to stop smoking. We will teach you the most easy, effective and step by step ways to quit smoking.
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| Surgery Door |
The site gives information on health conditions. There is a section for carers on the site. |
| Vitamins and Nutrition Center |
The website gives information on vitamins, the latest research on vitamins and expert knowledge on tips for proper supplementation. |
| Your Turn Campaigning to Prevent Pressure Sores |
This website is designed to help answer questions about pressure sores - how to understand the causes; how to prevent and treat them etc. |
Journals |
| Community Care |
Magazine dealing with issues related to community care |
| Health Service Journal |
Journal dealing with issues related to health matters and the health service |
Legal Advice Sites |
| Community Legal Advice |
Community Legal Advice is the new name for the Community Legal Service Direct. The service provides free and confidential legal advice. The service helps people tackle their problems through the: telephone helpline; website; digital TV service; centres and networks. Community Legal Advice is funded by the Legal Services Commission and delivered in partnership with independent advice agencies and solicitors.
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| Office of the Public Guardian |
Office of the Public Guardian is the administrative arm of the Court of Protection and part of the Department of Constitutional Affairs. It is responsible for providing services which promote the financial and social well being of people with mental incapacity. |
Local Health & Social Care Services |
| The Skillsnet Group |
The Skillnet Group is a non-for-profit organisation run by and for disabled people in Kent. The site provides information for people with learning difficulties and their carers. |
Mental Health Sites |
| Alzheimer's Society |
The Alzheimer’s Society is the UK’s leading care and research charity for people with dementia, their families and carers.
|
| beat |
Information and help on all aspects of eating disorders, including Anorexia Nervosa, Bulimia Nervosa, binge eating disorder and related eating disorders. beat (beating eating disorders) is the UK's leading eating disorder charity.
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| Choice and Medication |
This website offers people information about medications used in the mental health setting to help people make informed decisions about medication. |
| Clear Thoughts |
Clear Thoughts (the Mental Health in Learning Disability knowledge centre)
This website is for three groups of people.
1. People who have a learning disability
2. Their families and carers
3. Professionals and those supporting people and families.
This website aims to cover lots of topics relating to mental health for people who have a learning disability.
|
| Dementia Plus |
Dementiaplus is the DSDC (Dementia Service Development Centre) for the West Midlands. It provides help for professionals working with older people who have mental health problems of any sort. Their main activities include the exchange of information on good practice, training, consultation/networking and research. Our overall aim is to facilitate and support good practice for the benefit of patients and carers. |
| Depression Alliance |
The organisation works to relieve and to prevent this treatable condition by providing information, support and understanding to those who are affected by it and their carers via publications and an extensive range of services for people affected by depression. |
| For Dementia |
Admiral Nursing DIRECT provides a telephone or email advice and support for family carers, people with dementia and professionals
0845 257 9406
direct@fordementia.org.uk
|
| Making Space |
Making Space exists to help all those affected by schizophrenia and other forms of serious and enduring mental illness.
This is done by responding to requests for information, by providing services to meet real needs, by promoting support within the community, by advancing public understanding and more.
The current area of operation includes Cheshire, Cumbria, Greater Manchester, Lancashire, Merseyside, Staffordshire and Yorkshire.
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| MDF The Bipolar Organisation |
MDF The Bipolar Organisation works to enable people affected by manic depression to take control of their lives. The organisation supports and develops self-help opportunities for people affected by manic depression; provides information services about manic depression;
influences the improvement of treatments and services to promote recovery;
decreases the discrimination against, and promotes the social inclusion and rights of people affected by manic depression.
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| Mental Health Care |
Mental Health Care is an information and research news website developed by the Institute of Psychiatry and the South London & Maudsley NHS Trust & the mental health charity Rethink. The website is aimed at friends, relatives and carers of anyone with a mental illness. |
| Mental Health Foundation |
The Mental Health Foundation exists to help people survive, recover from and prevent mental health problems.
The organisation is working on the following issues:
undertake research; develop services; design training
influence policy and
raise public awareness.
The Foundation uses findings to provide high quality information, publications, training materials and online services for statutory, voluntary and community organisations, and for the general public.
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| Mental Health Shop |
The Mental Health Shop is an online resource for mental health publications, leaflets, booklets, videos, DVDs and more. The Mental Health Shop was founded by Mental Health Media and Rethink.
The site has been created specifically for:
people using mental health services and their carers
health professionals and organisations who care for people experiencing severe mental illness and other mental health problems.
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| Mental Health Support |
Mental Health Support is a partnership project between New Horizons and Rhondda Cynon Taf County Borough Council to provide accessible information about mental health and services available for people with mental health problems and their carers. |
| Meriden West Midlands Family Programme Website |
The Meriden West Midlands Family Programme Website, has been developed for use by service users, carers, family members and staff working in mental health services.
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| MIND |
MIND is a leading Mental Health charity in England and Wales, working to advance the views, needs etc. of people with mental health issues. |
| National Institute for Mental Health in England |
NIMHE supports local communities to improve mental health and the quality of services for people affected by mental health problems. It also answers questions from professionals and carers on mental health issues. |
| Rethink |
Rethink (the new operating name for the National Schizophrenia Fellowship), provides information on severe mental illness. Its aim is to work to help everyone affected by severe mental illness, including schizophrenia, to recover a better quality of life
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| Rethink Carers |
The website is for all mental health carers. The website has been designed with carers involvement and is an on line carers group. It builds on the work of hundreds of Rethink severe mental illness groups and services around the country and world wide.
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| SANE |
SANE has three objectives:
To raise awareness and respect for people with mental illness and their families, improve education and training, and secure better services. SANE undertakes research into the causes of serious mental illness. SANE also provides information and emotional support to those experiencing mental health problems, their families and carers through its national telephone helpline: SANELINE - 0845 767 8000 - which is open every day of the year. |
| SCB Network - Supporting Carers Better |
The site aims to include (and point to) material useful to 'all people supporting carers in mental health'. |
| Social Care Institute for Excellence Dementia Gateway |
The Social Care Institute for Excellence site gives practical tips, tools and activities to help in work with dementia. |
| Staffordshire Mental Health Information Resource |
This website is a resource which provides useful information and details of a range of mental health services and projects across Staffordshire offering help and advice.
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| Supporting Carers Better |
This is an England-wide network of all people supporting Carers in Mental Health - volunteer, voluntary Sector and statutory people supporting MH Carers in policy, strategy, development and delivery of services, support and information. |
| Taking Control |
Taking Control provides information on eating disorders as well as other disorders such as depression, self harm, anxiety and other disorders. The website provides support services with forums, chat, peer support ticket system, live chat to volunteers and a journals system. |
| The Royal College of Psychiatrists - West Midlands |
The Royal College of Psychiatrists is the professional and educational body for psychiatrists in the United Kingdom and the Republic of Ireland. We promote mental health by:
Setting standards and promoting excellence in mental health care
Improving understanding through research and education
Leading, representing, training and supporting psychiatrists
Working with patients, carers and their organisations
The West Midlands Division comprises all Fellows, Members and Affiliates of the Royal College of Psychiatrists living or working in the West Midlands.
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| The South Staffordshire Network for Mental Health |
The Network promotes the interests and rights of people who use mental health services in the Staffordshire area, providing information, developing a network and linking service user groups, across the area. The network also represents and involves individuals with experience of mental distress in the improvement, planning, development and implementation of mental health services across south staffordshire. |
| Together |
Together is a national charity providing services in the community and hospitals and prisons for people with mental health needs and their carers. The services include advocacy, assertive outreach schemes, community support, forensic services, helplines/information, respite for carers, social clubs, supported accommodation including 24-hour care. |
| Young Minds |
Young Minds is a national charity committed to improving the mental health of all children and young people |
Research Sites |
| Joseph Rowntree Foundation |
The Joseph Rowntree Foundation is the UK's largest independent social policy research and development charity. It supports a wide programme of research and development projects in housing, social care and social policy.
The Foundation also carries out practical innovative projects in housing and care through the Joseph Rowntree Housing Trust. They seek to ensure that these and the findings from the research programme are helpful in the development of better policies and practices across the UK.
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| Kings Fund |
Independent health care charity, focusing on improving health and social care through research and development to bring about better health policies. |
| Social Care Institute for Excellence |
SCIE was launched in October 2001 as part of the Government's drive to improve social care. The organisation is an independent registered charity. The role of the organisation is to develop and promote knowledge about good practice in social care.
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| Young Carers Research Group Loughborough University |
Department undertakes research into issues affecting Young Carers and their families. |
Sites for Professionals |
| Care and Health |
Careandhealth is the on-line resource for professionals in social care. The site has an effective and popular recruitment area, extensive policy and law references, daily news, features on professional practice, a database of UK approved social work courses, discussion areas and over 1600 links to other sites.
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Sites Offering Respite Care/Holidays |
| Alternative View |
Alternative View run therapeutic respite breaks in Southern Spain
for the parents partners and carers of drug and alcohol misuser's. A specialist support service which will assist you in understanding the process of recovery and how you can best support the person you care for.
We also run respite breaks for carers which provide you with the opportunity to relax and unwind in the beautiful and tranquil setting of Jumilla Southern Spain. Allowing you to return to your caring
responsibilities feeling refreshed and recuperated. |
| Bond Hotel Blackpool |
The Bond Hotel aims to offer affordable value holidays for people with disabilities and their carers. |
| BREAK |
BREAK provides special care services for children, adults and families with special needs - including holidays and respite care, children's homes, adult day care and residential assessments for families in crisis. |
| BSR Spain Supported Holidays |
BSR Spain Supported Holidays is a specialised independent holiday service in Costa Blanca, for people with special needs, learning disabilities or mental health difficulties. The company offers support for older people and respite for families. |
| Carefree Holiday, Spain |
Husband and wife (who is a fully qualified English nurse (RGN)) run a guesthouse in Spain offering holidays for disabled guests and their carers. They have set up a small team and can now offer respite care so that the family member can get the full benefit from their holiday while the disabled person still gets a holiday rather than being placed in a nursing home environment. |
| Disaway Trust |
The Disaway Trust is a registered charity that organises group holidays with physically disabled people, which has been in existence since 1981. The organisation is run entirely by a Committee of Volunteers and is supported by voluntary help and contributions. The age range is between 16 and 80 and we try and have a mixed group of men and women and all ages on each holiday.
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| Grooms Holidays |
Grooms Holidays is part of the John Grooms charity. It is the UK largest provider of accessible holiday properties for the disabled and their families. John Grooms provides a range of services for people with disabilities, enabling greater independence, choice and freedom. |
| Holiday Care |
The organisation provides informationto disabled people, enabling them to take a holiday in a mainstream environmwnt with family and friends. |
| Holidays for All |
Holidays for All is an organisation consisting of a group of UK leading disabilities organisations working together to promote quality, accessible holiday breaks for people with an illness or disability. Holidays can be accompanied or unaccompanied. |
| Leonard Chesire Hotel for the disabled |
Park House Hotel is the only hotel operated by Leonard Chesire. The guests can come in with or without carers and the hotel offers as little or as much care as required. |
| Shared Care Network |
Shared Care Network is the national organisation which promotes family-based short breaks for disabled children in England, Wales and Northern Ireland. |
| The Ellwood Centre |
Superbly equipped cottages where comfort, cleanliness and relaxation are top priorities. ‘Wet-room’ showers and everywhere fully wheelchair accessible - ideal for less able-bodied guests. Indoor splash-pool, recreation room and a therapy room. In the heart of the beautiful North Dorset countryside.
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| The Kiloran Trust |
A large welcoming house in west London in which full time carers at home can come for a holiday / supportive break. |
| Vitalise |
Vitalise (formerly Winged Fellowship Trust) is a national charity providing essential breaks for disabled people and carers. Vitalise also runs holidays for visually impaired people. Vitalise aim to offer choice through an enabling environment and opportunities for volunteers. |
Sites on Specific Conditions |
| Alcohol Concern |
Site giving information about alcohol misuse. |
| Arthritic Association |
The Arthritic Association aims to relieve the suffering and pain of arthritis and allied illnesses, by natural methods. |
| Arthritis Care |
This site gives information on arthritis. |
| Basic (Brain & Spinal Injuury Charity) |
BASIC provides a specialist resource at the Neurocare Centre for people and their families in crisis following a traumatic brain injury or neurological diagnosis. This includes people recovering from severe head injury, brain
haemorrhage, brain tumour and other brain-related conditions such as stroke and brain cancer. With over ten years experience of working with this client group we have built up specialist expertise and knowledge from the grass roots. BASIC is affiliated to the Greater Manchester Clinical Neuroscience Centre, and works in close collaboration with the staff there to meet needs of patients within the community.
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| British Colostomy Association |
This site gives information on the British Colostomy Association and help for anyone about to have a colostomy. |
| Deafblind UK |
Deafblind UK is a national charity which provides a range of support services to deafblind adults and their carers. It also campaigns on behalf of deafblind people.
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| Eating Disorder Association |
This site gives information, help and support to people and their carers affected by eating disorders and in particular anorexia and bulimia nervosa. |
| Families Anonymous |
Families Anonymous is a world wide fellowship of relatives and friends of people involved in the abuse of mind-altering substances, or with related behavioural problems. FA has groups, spread throughout the country, which meet regularly. Any concerned person is encouraged to attend the meetings, even if there is only a suspicion of a problem. |
| Headway - The Brian Injury Association |
The organisation provides information, support and services to people with a brain injury, their family and carers. |
| Hearing Concern |
Hearing Concern is a national charity dedicated to improving the quality of life for those who are hard of hearing. The organisation provides advice, information and support, including a national HelpDesk service to all deaf and hard of hearing people, their families and friends whenever they need help and guidance on hearing loss. |
| Help the Aged |
The organisation provides practical support to help older people live independent lives, particulary those who are frail, isolated and poor. |
| Huntington's Disease Association |
The Huntington's Disease Association exists to support people affected by the disease and to provide information and advice to professionals whose task it is to support Huntington's disease families in the UK. |
| Hyperactive Children's Support Group |
The organisation provides information to parents, carers and professionals concerned for ADHD/hyperactive children. Non medication therapies are a priority. |
| ICD Patient & Family Heart Support Group of North Staffordshire |
The ICD Patient and Family Heart Support Group of North Staffordshire provides support for those patients who have been fitted with ICD's Implantable Cardioverter Defibrillator (a built in heart start devise).
The Group has been established since 1996 with members all over the UK.
ICD Helpline 01782-852509
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| Insulin Dependent Diabetes Trust |
The organisation offers care and support to people with diabetes and their carers. To inform and disseminate information to the general public and professional health care workers to create a better understanding of diabetes. |
| Living with Cerebral Palsy |
This family friendly site provides information and support for disabled people and families coping with Cerebral Palsy and Scoliosis and or an associated disability. The site is created by someone living with both conditions who can share her experiences. |
| Look National Office |
The organisation provides practical help, support and information to families with visually impaired children. |
| Meningitis Trust |
The Meningitis Trust is provides support for people affected by meningitis and meningococcal disease and their carers.
The organisation offers emotional and practical support through a range of professional services, including the 24-hour telephone support line and counselling and comprehensive information for the public and professionals.
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| Motor Neurone Disease Association |
The Association is a national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.
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| MS Society |
The MS Society is the UK's largest charity for people affected by Multiple Sclerosis (MS).
The Society funds MS research, runs respite care centres, provides grants, education and training on MS. It produces numerous publications on MS and runs a freephone specialist Helpline.
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| MS Trust |
The MS Trust is a leading independent UK charity for people with MS, their families and friends and for all health professionals who work with them.
The Trust offers practical solutions including: Information about MS that is positive and constructive through the professional information service and the production of publications.
Education for nurses and other health and social care professionals.
Research which is practical and relevant to people who are living with MS now. |
| Multiple Sclerosis Resource Centre |
The Multiple Sclerosis Resource Centre (MSRC) is a charity, committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice. The organisation's approach is to encourage individuals to make choices that are appropriate to their daily lives, empowering them to maximise their potential.
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| Muscular Dystrophy Campaign |
The organisation provides people who have neuromuscular conditions, and their families, with information and advice about their condition and ways in which living with it can be made easier. The organisation funds (with some contribution from the NHS) 11 MDC Care Advisors who are based in clinics around the country. They are on hand to give advice and support to people who are affected by neuromuscular conditions.
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| Nat Assoc for Colitis and Crohn's Disease |
The National Association for Colitis and Crohn's Disease (NACC) brings together people of all ages who have Ulcerative Colitis or Crohn’s Disease, their families and the health professionals involved in their care. These two illnesses are both forms of Inflammatory Bowel Disease (IBD) and they affect about 1 in 400 people in the United Kingdom. NACC provides: support through 70 Groups; the NACC-in-Contact Support Line and individual welfare grants; an Information Service by telephone and email; a range of Information Sheets on specific topics; guidance on disability benefits and
research. |
| Nat Assoc for the relief of Paget |
The association offers support and information to Paget's Disease sufferers.
The Association sponsors research into the causes and treatment of the disease and raises awareness of the disease among the medical profession and the public. |
| Nation Deaf Children's Society |
The National Deaf Children’s Society is dedicated to providing support, information and advice for deaf children and young people, their families and professionals working with them.
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| National Asthma Campaign |
The organisation helps and advises people with asthma to understand and control their condition. It also researches the condition. The organisation runs over 75 local branches throughout the UK and produces literature on all aspects of asthma. There is also a national helpline staffed by nurses. |
| National Back Pain Association |
BackCare (registered as the National Back Pain Association) is an independent national charity that helps people and their carers manage and prevent back pain by providing information, promoting self help, encouraging debate and funding research into better back health. |
| National Eczema Society |
The National Eczema Society is dedicated to the needs of people with eczema, dermatitis and sensitive skin.
The Society provides the practical information and support needed to manage skin problem effectively. The helpline of the Information Department can provide full access to the latest information through membership, providing support for people with eczema and their carers.
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| National Osteoporosis Society |
The Society provides information and support for people with osteoporosis and their carers, by promoting education for the public and health professionals. |
| Parkinson's Disease Society |
The Parkinson's Disease Society has over 300 branches and support groups throughout the UK. The Society provide support, advice and information to people with Parkinson's, their carers, families and friends, and to health and social services professionals involved in management and care. The Society also funds research into the cause, cure and prevention of Parkinson's, and improvements in available treatments. The Society also develops models of good practice in service provision, such as Parkinson's Disease Nurse Specialists and respite care, and campaigns for changes that will improve the lives of people affected by Parkinson's.
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| Prader-Willi Syndrome Association (UK) |
This association offers support for people with Padar-Willi Syndrome, their families, carers and professionals. |
| Rett Syndrome Association UK |
The Association is a national charity, offering information, advice, practical help, friendship and support to people with Rett syndrome, their families and carers.
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| RNIB |
The RNIB is UK’s leading charity offering information, support and advice to over two million people with sight problems.
The RNIB's work helps anyone with a sight problem – not just with braille, Talking Books and computer training, but with imaginative and practical solutions to everyday challenges. If you or someone you know has a sight problem contact the Helpline on 0845 766 9999.
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| RNID |
RNID are the largest charity working to change the world for deaf and hard of hearing people. Their vision is a world where deafness and hearing loss are not barriers to opportunity and fulfilment. |
| Samantha Dickson Brain Tumour Trust (SDBTT) Astro Fund |
The SDBTT Astro Fund specialised in support for patients and carers living with a low-grade (slow growing) brain tumour. The Astro Fund can be contacted on 0845 130 7627 (local rates apply). |
| Samantha Dickson Brian Tumour Trust (SDBTT) |
This is the largest brain tumour charity in the UK. The SDBTT specialises in support for families and carers affected by high-grade brain tumours and can be contacted on 0845 130 97333 (local rates apply). |
| Scoliosis Association UK |
The Scoliosis Association (UK) is the only independent support group for scoliosis in the UK. There is no cure for scoliosis, only corrective treatment for the twisting and curving spine. SAUK aims to provide information about scoliosis, eliminate fear and stigma, and offer contacts for shared experiences, because:
adolescents need support and reassurance; parents need information and contact with others who have been through the same situation; older people need help with pain and the public need to be aware of the importance of early detection of scoliosis in children.
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| Sense |
Sense is a national organisation that works with and campaigns for the needs of children and adults who are deafblind, providing advice, support, information and services for them, their families, carers and the professionals who work with them. |
| Sickle Cell Society |
The Society provides help and support to sickle cell sufferers and their immediate families nationwide. It promotes awareness of the condition via information leaflets, books, videos and talks. |
| Society for Mucopolysaccharide Diseases |
The Society is a voluntary support group which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals. The Society has the following aims: to act as a support network for those affected by MPS & Related Diseases; to bring about more public awareness of MPS & Related Diseases and to promote and support research into MPS & Related Diseases. |
| Spinal Injuries Association |
The Association provides information on all aspects of spinal cord injuries to paralysed people, their relatives and all those concerned with their welfare. |
| Stroke Association |
The Association works for the prevention of stroke illness and helps sufferers. The organisation carries out a programme oof research, health education, rehabilitation, welfare and information services. |
| Tuberous Sclerosis Association |
The TSA provides accurate and up-to-date information about tuberous sclerosis. It can put families or individuals in touch with one another and offer advice on a range of issues associated with tuberous sclerosis, as well as recommending additional sources of help.
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| UK Thalassaemia Society |
The Society aims to help in the relief of persons suffering from Thalassaemia.
The promotion and co-ordination of research in connection with Thalassaemia; to educate people on the problems of Thalassaemia; to offer counselling to sufferers and carriers; to bring together patients, families and well-wishers to exchange ideas and information and to raise funds.
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| Vitiligo Society |
The Vitiligo Society is the only organisation which offers support and understanding to people with vitiligo and their families in the UK and the Republic of Ireland.
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| WIRED |
WIRED aims to raise awareness and understanding of substance misuse, the problems it creates and the ways to deal with these problems. It develops new resources of information, support, education, training and research. |
Sites which Support those with a Disability |
| Ability On Line |
This site gives information for those with a disability. |
| Assist UK |
Assist UK is a place where free and ethical information and advice about products is given, which can increase disabled or older people's choices about how they live. At Assist UK, products can be tried out and other solutions examined. Centres provide free information to people in person, by telephone, letter or email.
Assist UK is a national organisation. The organisation aims to improve disabled and older people's access to accurate, reliable and impartial information and advice about products and equipment for easier living.
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| British Institute for Learning Disabilities (BILD) |
The Institute is involved in policy and research; learning services - training staff, family carers and people with learning disabilities and producing books, journals and training materials. |
| CCNUK Care Co-ordination Network UK |
Care Co-ordination Network UK (CCNUK) is a networking organisation promoting and supporting key working for disabled children and their families in England, Northern Ireland, Scotland and Wales. CCNUK's mission is to:
Throughout the UK have access to high quality care co-ordination or key worker services.
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| Clear Thoughts |
This website is for three groups of people.
1. People who have a learning disability
2. Their families and carers
3. Professionals and those supporting people and families.
This website aims to cover lots of topics relating to mental health for people who have a learning disability. |
| Contact a Family |
National organisation which provides support and information to families of children with any disability, special need or rare disorder.
There is a regional office covering the West Midlands, which can put local families in touch with local services, groups and organisations. The office can offer: information through the helpline on parent groups, specific conditions, local services, information (e.g. benefits, siblings and holidays); support and information to existing parent groups and help in setting up new groups; workshops offering shared learning and mutual support for local families; free regional newsletter and close working relationships with other organisations to promote the interests of parents and families.
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| DIAL UK (Disability Information & Advice Line) |
Dial UK is a national organisation for the DIAL network, with 140 disability advice centres for people with disabilities. |
| Disabled Parents Network |
The organisation provides support, information and advice to disabled parents and their families. |
| Down's Heart Group |
The Down's Heart Group is a UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects.
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| Down's Syndrome Association |
The organisation provides information, advocacy and support with people with Down's Syndrome, their carers and interested professionals. |
| Enable Together |
This interactive information website aims to assist disabled people to lead a more independent life by empowering them with knowledge and choice. It will inform and guide the user, enabling them to achieve a better understanding of a wide range of topics regarding health care, independent living and also related products and services that may be useful or of interest.
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| Every Disabled Child Matters |
Every Disabled Child Matters (EDCM) is the campaign to allow all disabled children and their families to have the right to the services and support they need to live ordinary lives.
EDCM is a campaign by four leading organisations working with disabled children and their families – Contact a Family, Council for Disabled Children, Mencap and the Special Educational Consortium.
EDCM is an inclusive campaign representing thousands of disabled children, young people and families. Through the Council for Disabled Children and the Special Education Consortium, the campaign has direct access to hundreds of organisations, professionals, and disabled people working with and for disabled children, young people and their families.
EDCM is focused on England, but will be supporting campaigning activity in the other UK nations, as well as campaigning on non-devolved issues such as benefits.
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| Handsel Trust |
The Handsel Trust promotes support in the UK for all children with disabilities and special needs and their families. |
| KIDS |
'Kids' help disabled children to get the most out of life. The organisation works closely with parents and carers to give children and young people all the support they need today to fulfil their hopes and dreams tomorrow.
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| Leonard Cheshire |
Leonard Cheshire works with thousands of disabled people and their carers, helping them to live independently, whether that means a few hours of care at home, or more intensive support at one of the residential and nursing homes.
The organisation also provides independent and supported living, respite care and day services and are developing services for people with an acquired brain injury.
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| Mencap |
Mencap is the UK's leading learning disability charity working with people with a learning disability and their families and carers.
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| National Association for Special Educational Needs |
The National Association for Special Educational Needs provides research and information on Downs Syndrome. |
| National Autistic Society |
The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs. The website includes information about autism and Asperger syndrome, the NAS and its services and activities. |
| National Downs Syndrome Society |
The Society, based in the USA, provides information, education, research and advocacy around Downs Syndrome. |
| Network 81 |
Network 81 is a national network of parents working towards a properly resourced inclusive education system for child with special educational needs. |
| RADAR |
The organisation provides information and advice about a range of subjects that affect the daily lives of disabled people. |
| RESCARE |
RESCARE supports people with learning disabilities and their carers. There is a necessity for a wide range of service options to meet the often multiplicity of needs and RESCARE seeks to promote real choice in:
Education: through properly resourced mainstream, special day and residential schools.
Residential and various Living Environments, support services and respite care.
RESCARE supports whichever choice suits the individual best.
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| Respond |
Respond works with people with learning difficulties of all ages, who have been abused. Respond do face-to-face work and also have a helpline: Mondays & Thursdays: 2-7pm; Tuesdays, Wednesdays & Friday:12 - 5pm. Helpline Number: 0800 808 0700 |
| Scope |
Scope is the disability organisation in England and Wales whose focus is people with cerebral palsy. The aim is that disabled people achieve equality. Scope provides information via the
Cerebral Palsy Helpline,
(call free on 0808 800 3333). Scope provides leaflets for parents as well as factsheets on therapies and other aspects of living with disability.
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| Special Abilities |
The organisation provides information and advice and support around disability issues of parents and carers of a disabled child and adults with a disability, locally in Wakefield and also on a national basis. |
| The Rowan Organisation |
The Rowan Organisation is an organisation of disabled people which provides disabled people with access to information, services and resources in order to increase their opportunity for independence and enable them to make informed choices about their future.
This site provides information about the services the organisation provides together with links to other resources which people may find useful.
The Rowan Organisation is currently under contract to provide support and assistance to users of Direct Payments in the Staffordshire area.
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Sites which Support those with Cancer |
| 2Higher Ground |
2Higher Ground is a network of trained coaches who, through conversation, either by telephone or face to face, offer support, encouragement and questions to help working age carers of people who have cancer. |
| Cancer - Carers Support |
Providing Emotional Support and Practical Advice for Carers and those affected by Cancer of All kinds including Mesothelioma. Cancer Pain Control advice, Symptom Management, E-Mail Grief Support, Inspirational Speaking Services for Carers, Nutritional Advice for Cancer Patients and Carers and Inspirational True Story Cancer Books and Poetry by Lorraine Kember, fellow Carer and Author of “Lean on Me “Cancer through a Carer’s Eyes. No one understands more than someone who has been there …
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| Cancer Info Guide |
Cancer-info-guide.com provides comprehensive information about various types of cancers such as prostrate cancer, breast cancer, lung cancer, skin cancer, throat cancer and many more.
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| Cancer Information Guide |
Information on cancer includes most types of cancer such as skin cancer, bladder cancer, bone cancer, brain cancer etc., with expert information on their causes, symptoms, risk factors and treatment procedures.
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| Cancer Journey |
Cancer Journey Tel: 0303 333 000 3 – is a national cancer information signposting service for any one affected by any type of cancer. Our information categories include carers pages, living and working with cancer, how to find local and national support amongst many others.Our helpline operates 10am till 4pm 7 days a week. |
| CancerBACUP |
The organisation provides information about all aspects of cancer as well as emotional support for cancer patients and their carers. |
| Chemo Care |
Chemo Care - Scott Hamilton's chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends. |
| Chemotherapy and Beyond |
Scott Hamilton’s chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends.
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| Lymphoma Association |
The Association provides emotional support and information for patients with lymphoma (Hodgkin lymphoma - formerly known as Hodgkin's Disease - and Non Hodgkin Lymphoma), their families and carers. |
| Macmillan Cancer Relief |
The charity provides expert treatment and care through specialist Macmillan nurses and doctors, buildings for cancer treatment and care and grants for patients in financial difficulties. The organisation also provides information to those with cancer and their carers. |
| Marie Curie Cancer Care |
The website provides a wide range of information for anyone who wants to know more about cancer, the disease, or wants to know about the implications of caring for a cancer patient at home.
There is also information on the charity's 10 hospices around the UK and to the Marie Curie Research Institute.
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| Mesothelioma |
The MAA Center website provides up-to-date and well researched content focused on mesothelioma cancer, and, in addition, the site also features a database of information about other forms of cancer, including lung cancer, breast cancer, and prostate cancer. Also featured is up-to-date information about clinical trials, thoracic surgery, new cancer treatments, and pages on the leading oncologists.
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| Mesothelioma & Asbestos Cancer Resource |
Asbestos.net provides a comprehensive resource on asbestos and its devastating effects, including mesothelioma, asbestos cancer, and other asbestos-related diseases.
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| Mesothelioma Cancer Center |
Asbestos.com is committed to providing the latest, up-to-date information to site visitors in the hopes of spreading awareness about the dangers of asbestos cancer. This website offers a one-stop resource on all asbestos issues ranging from occupational exposure to mesothelioma treatment options. As the leading asbestos and mesothelioma resource since 1995, Asbestos.com offers more than 2000 pages of the most comprehensive information on the web.
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| Mesothelioma Web |
This site provides information and support to those who have been exposed to asbestos and mesothelioma. |
| Online Cancer Guide |
A comprehensive resource providing complete informationon various types of cancers such as prostrate cancer, breast cancer, lung cancer, skin cancer, throat, blood cancer, brain cancer, bone cancer etc. Also know about the causes of these cancers, symptoms, various treatment methods etc. |
| Personalised Information Education and Support on Cancer |
The site is designed to help people with cancer and their carers obtain information about cancer at all stages of their illness. The site has been set up by the University of Sheffield. |
| Sargent Cancer Care for Children |
The organisation looks after the needs of all youg people under 21 who have cancer, leukaemia or Hodgkin's Disease. The organisation gives practical financial help, short breaks and emotional support to children and youg people with cancer and their families; support groups and advice and cash grants for expenses arising fron illness. |
Sites which Support those with Life Threatening Illnesses |
| Befriending Network |
The Befriending Network offers help and support to the person with a life threatening or terminal illness and their carers. |
| Bereavement & Grief Information – Armchair Advice |
If you need help coping with a terminal illness, are facing death or have suffered a bereavement visit Armchair Advice for support
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| Cruse Bereavement Care |
This national organisation that helps and supports anyone who had been bereaved by death. |
| Help the Hospices |
The Help the Hospices' website is for carers, and health care professionals working with carers.
The website is part of Help the Hospices' new Caring for Carers information and support package for carers of people living with a terminal/ life-limiting illness.
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| Hospice Information Service |
The organisation runs an information exchange and communication network for the hospice movement. Enquiries are welcomed from professionals and members of the public. |
| React |
React is a national charity that assists families caring for potentially terminally ill children by providing support in the form of specialist, domestic and educational equipment; hospital travel & subsistence expenses, respite breaks at React holiday homes and very sadly, funeral expenses and memorial headstones |
| Time to Care |
Time to Care is a new website from Help the Hospices designed for carers and health care professionals working with carers. The website offers important information in a single place to help carers to find out about help and support available to them. |
Staffordshire County Council |
| Staffordshire County Council |
This Council serves a population of 800,000. The social services department has a responsibility for services for children, young people & families, adults, because of age, disability or mental health who require assistance in their daily living. |
| You Find Me |
Website gives information on things to do and places to go for young people in Staffordshire. |
Staffordshire NHS |
| Cannock Chase Primary Care Trust |
This Primary Care Trust covers the areas of Cannock, Rugeley, Hednesford, Great Wyrley, Cheslyn Hay and Norton Canes. The population covered by the 31 General Practices in the area is approximately 128,430. |
| Children |
This website has been designed to help parents, carers and children find out about the people and teams who provide health services for children and young people in South Staffordshire. |
| Mid Staffordshire NHS Foundation Trust |
Mid Staffordshire NHS Foundation Trust operates and manages Stafford Hospital and Cannock Chase Hospital . From these two sites, the Trust provides a wide range of healthcare services – both medical and surgical – for the people of Stafford , Cannock , Rugeley and surrounding areas. We aim to offer a wide range of services, which are excellent and easy to access. We do this by working in partnership with local healthcare providers, by listening and responding to the needs and requirements of the local population and by supporting our highly skilled staff.
As a Foundation Trust we need local people to join us as Members of our Trust, so that we can really represent the views of the communities we serve, so please do log on our site and join up as a Member.
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| PPI Forum South Western Staffordshire |
PPI Forum South Western Staffordshire works in partnership with
Southwestern Staffordshire Primary Care Trust. The Forum is made of up of volunteers in their local community who are enthusiastic about helping patients and members of the public and influence the way that local healthcare is organised and delivered. Forum members come from a broad variety of backgrounds and have a range of experience and skills.
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| Shropshire & Staffordshire Strategic Health Authority |
The Authority works in partnership with local hospital, community, ambulance and primary care trusts to deliver improved health and healthcare for the people of Shropshire and Staffordshire. |
| South Staffordshire Primary Care Trust |
South Staffordshire Primary Care Trust (PCT) has brought together health and well-being information, to support partners and stakeholders by providing details of ways that patients and the general public can protect and improve their health.
The advice and guidance ranges from getting immunised to understanding substance misuse, eating well and encouraging more people to quit smoking.
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| Staffordshire Local Area Agreement Website |
This site provides information about Staffordshire's Local Area Agreement (LAA). It sets out what an LAA is, why we are undertaking the LAA process as well as providing information about the timescales, key milestones and people involved in the LAA process.
The Local Area Agreement is a three year agreement between central Government and the local authorities, and other partners such as health, colleges, police, fire and the voluntary and community sector in Staffordshire. It will run from April 2007 to March 2010.
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| Staffordshire Mental Health Information Website |
This website is a resource which provides useful information and details of a range of mental health services and projects across Staffordshire where you can get help and advice. |
Staffordshire/Midlands Voluntary Sector Organisations |
| Advocacy Services in Staffordshire (ASIST) |
Asist aims to provide individual advocacy to anyone with a disability living in Staffordshire. The service offers support in meetings, assessments, reviews and complaints. Advocates will also find information so that people can make an informed, empowered choice about their own care. Also promotes advocacy through training, enabling and supporting other groups who wish to provide advocacy. |
| Age Concern Stafford |
The organisation provides services for older people in the Stafford area including community services, day care and information and advice. |
| Birmingham Carers |
This site gives useful information on services, organisations etc. for carers in the Birmingham area, but also includes general information for carers in the U.K. |
| Communities Together |
This is an information resource for the voluntary and community sector in Staffordshire and Stoke-on-Trent. |
| Health and Social Care Liaison Team for Southern Staffordshire |
The Health and Social Care Liaison Team (HSCLT) is based at Lichfield and District Council for Voluntary Service and supports the community and voluntary sector to input into health and social care planning and development throughout southern Staffordshire.
Southern Staffordshire includes the local authority areas of Cannock Chase District, East Staffs Borough, Lichfield District, South Staffordshire District, Stafford Borough and Tamworth Borough Councils.
The area of Southern Staffordshire includes the following Primary Care Trusts (PCT):
Burntwood Lichfield and Tamworth PCT
Cannock Chase PCT
East Staffordshire PCT
South Western Staffordshire PCT.
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| North Staffordshire Housing Alliance |
This site provides housing, health and welfare advice from a collection of organisations whom form the North Staffordshire Housing Alliance. |
| The Lighthouse Group |
A self help group run by parents and carers of young people who have Attention Deficit Hyperactivity Disorder or behavioural problems. |
| WINGS - Wombourne Special Needs Support Group |
WINGS is run by parents and supports local families with children and adults with special needs. WINGS provides holiday playschemes and clubs as well as organising a monthly get together for parents. |
| WINGS: Wombourne Special Needs Support Group |
WINGS: Wombourne Special Needs Support Group, provide practical support for parents and carers of children with special needs. Please click here to visit their website.
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Young Carers Sites |
| Barnardos |
Barnardo's helps the most vulnerable children and young people (including young carers) transform their lives and fulfil their potential. |
| BBC Radio 1 Website |
The BBC Radio One website has a section dedicated to young carers. The Onelife section features case studies, issues affecting young carers and
an overview of current legislation.
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| Emma - Experiences of a Young Carer |
Emma Ventham has developed a website based on her own experiences as a young carer. |
| Milly's Fund |
In October 2002 Sally and Bob Dowler launched Milly's Fund following their daughter's abduction and murder. The aim of the website is to promote personal safety amongst children and young adults. |
| RipRap when a Parent has Cancer |
A website for young people who have a parent with cancer. The site includes information on various types of cancer, support for carers and young people's experiences of living with a parent with cancer. The site has been set up by the University of Sheffield. |
| Stonethrow |
An internet based information and e-commerce resource for children, young people and the adults who live teach, care for and work with them. |
| Winston's Wish |
Winston's Wish hel bereaved children and young people rebuild their lives after a family death. The organisation offers practical support and guidance to families, to professionals and anyone concerned about a grieving child. |
| Young Carers Initiative |
The Children's Society National Young Carers Initiative provides information, advice and training to anyone who works with young carers and their families . It is also funded by Hampshire County Council to deliver development work across Hampshire.
The organisation works with young carers projects and other organisations to develop good quality support and information for young carers, their families and those who work to support them. |
| Young Carers Net |
The Young Carers Net is a site for under 18s who are also informal carers. The site is run by the Princess Royal Trust for Carers. |
| Young Carers Net for professionals |
The Young Carers net for professionals gives guidance on policy etc. for professional working with Young Carers. The site is administered by The Princess Royal Trust for Carers. |
| Young Carers Research Group |
The Young Carers Reasearch Group was founded in 1992 and is based in the Department of Social Sciences at Loughborough University. The research group comprises Jo Aldridge, Darren Sharpe and Chris Dearden . The YCRG conducts high quality research, evaluation and consultancy on all matters relating to children with caring responsibilities – young carers – in order to advance knowledge and inform the development of health and social care policy and good practice. |
| Young Minds |
Young Minds is a national charity committed to improving the mental health of children and young people. |
